I'm not one to bemoan a year its insults to my life, but the same as many of my friends, this one's been a challenge. It's not because talented celebrities passed, several far too young. No, it's because of the changes the year has wrought on my life and those I care about. Nothing is ever all bad, though it can certainly seem to lean that way sometimes.
My dad has a very aggressive form of dementia that has become the major focus of mine and my mother's lives. I have no siblings to help, so I'm the one who helps with decisions and heavy lifting, both physical and emotional. Most of you have some experience with Alzheimer's or dementia--it's just a fact of our culture today. It touches everyone. I helped moved my parents from my childhood home in Louisiana to an independent living senior apartment near my home in Georgia. It's worked well for me because now I don't have to travel or worry nearly as much, but it's not without its learning curve for us all. I can't imagine being ripped away from everything and everyone I've known for over forty years, in addition to spending every waking moment caring for someone who was, until very recently, partner, support, and strong shoulder to lean on. My mother is grieving for all she's lost in the past year, as am I.
The writing has been
hard this year. The third book in my Alabama series took on a deeper tone, as books do when authors are in emotional turmoil. It manifests in the story. That's not a bad thing, unless you're trying to keep it light. Hopefully, by the time I finished the book, I managed to strike a balance between the newfound gravitas and what my readers enjoy about my humorous, hopeful, and Southern family fiction. Oh, and there's romance, of course. It's all still there.
So, while I'm sorry to hear about the uber-talented famous folks leaving the earth, I tend to look inward and grieve the loss of my own, and those whose losses are closer and more personal. My sweet friend lost her brand new husband and soulmate, and a writer friend has battled fires, floods, and mudslides. No, I don't blame the year, but I'm certainly looking on the bright side for the upcoming one for so many reasons.
My wish this year is that we all achieve our secret wishes and goals. The ones we are afraid to say out loud. The ones that might sound selfish because of all the bad things happening in the world. I wish for positive changes in our attitudes toward the future and one another. Have hope--about everything. Find a way to make someone's day better--every day. Treat the invisible as if they are the most important person you've met all day. Good things happen to good people. We are all we have, folks.
Oh, and HAPPY NEW YEAR!!
Join us for a visit with some of our favorite authors whose books we love to read and share with everyone. You'll get to hear from authors who've become friends over the years, authors we're just discovering, and lots of prizes and books to win!
Showing posts with label dementia. Show all posts
Showing posts with label dementia. Show all posts
Monday, January 02, 2017
Wednesday, January 15, 2014
The IMportance of planning ahead by Michelle Styles
So far 2014 has been one of personal crisis for me. It start on New Year's Eve when my father in law had to go into hospital and had failed to make provision for my mother in law who suffers from dementia. I won't bore you with the details but my mother in law was taken into care and my father in law has moved in with us. They are both now safe.
Although my mother in law had been diagnosed in 2011 as suffering from dementia, they had not taken any steps or indeed learnt much about this very cruel condition. Instead they opted for the head in sand approach and tried to cope. We live four hours away and it was very easy for them to pretend that everything was all right. Apparently this happens quite often as dementia sufferers can be quite adept at hiding things until it is far too late. My mother in law decided that she did not need to go to see doctors -- something we were unaware of. It is all terribly sad but the real reason why I am writing this blog is to urge other people not to sleep walk into such a situation.
My in laws singularly failed to appoint anyone to act as their attorney in event of their own physical or mental incapacity. Because of this, we now have to go down the route of having my mother in law declared mentally incapable and having my husband (hopefully) appointed as a Deputy of the Court of Protection to safeguard her financial affairs. It is a much more expensive and traumatic way to have to do it. In the UK, the lasting power of attorney only come into effect when you are no longer capable and you are able to stipulate many things about your care which must be taken into consideration. The Alzheimer's Society has links to the forms. It can easily be done when people are drawing up or updating their wills.
One of my aunts when she learnt about my mother in law's plight asked how old she was as she was certain dementia only happened to people in their 80s. My aunt is in her early 70s and thought she still had some years to go before she had to worry. My mother in law is 78. She has been displaying symptoms over the past decade. A friend of a friend developed dementia when she was 52. It can happen at any age. Nobody knows the precise cause either. There are lots of theories but...
There are also many types of dementia. Alzheimer's is perhaps the best known form. And sometimes a brain scan can be inconclusive as it was with my mother in law and the precise nature of the dementia can not be pinpointed. Dementia is one of the major hidden problems in our aging population. Unfortunately it still retains a stigma and people can be reluctant to seek help or get involved.
Dementia is a terribly cruel condition and a bit like a wall being slowly built around a person as they lose the ability to effectively communicate. The person remains inside that wall and is underneath the same person. When the wall becomes too thick, the person does need specialist care but there are a load of things that can be done to slow the building of the wall and enable the person to live as independently as possible for as long as possible. However the person and their primary carer do have to take responsibility and seek out help. The primary carer needs as much support as the person suffering from dementia. And the people who work with dementia sufferers are not there to judge or point fingers but to help. It is all about dignity and allowing the sufferer to live as full a life as possible.
I truly wish my in laws had sought help and had not fallen through the cracks. I wish I had nagged more and had not accepted things at face value but I am the foreign daughter in law and was reluctant. Unfortunately you can not change the past, you can only go forward.
If just one person after reading this blog takes the time to get their affairs in order or urges someone else to, then this blog will have accomplished its purpose.
Michelle Styles writes warm, witty and intimate historical romances. You can read more about Michelle and her books on www.michellestyles.co.uk
Although my mother in law had been diagnosed in 2011 as suffering from dementia, they had not taken any steps or indeed learnt much about this very cruel condition. Instead they opted for the head in sand approach and tried to cope. We live four hours away and it was very easy for them to pretend that everything was all right. Apparently this happens quite often as dementia sufferers can be quite adept at hiding things until it is far too late. My mother in law decided that she did not need to go to see doctors -- something we were unaware of. It is all terribly sad but the real reason why I am writing this blog is to urge other people not to sleep walk into such a situation.
My in laws singularly failed to appoint anyone to act as their attorney in event of their own physical or mental incapacity. Because of this, we now have to go down the route of having my mother in law declared mentally incapable and having my husband (hopefully) appointed as a Deputy of the Court of Protection to safeguard her financial affairs. It is a much more expensive and traumatic way to have to do it. In the UK, the lasting power of attorney only come into effect when you are no longer capable and you are able to stipulate many things about your care which must be taken into consideration. The Alzheimer's Society has links to the forms. It can easily be done when people are drawing up or updating their wills.
One of my aunts when she learnt about my mother in law's plight asked how old she was as she was certain dementia only happened to people in their 80s. My aunt is in her early 70s and thought she still had some years to go before she had to worry. My mother in law is 78. She has been displaying symptoms over the past decade. A friend of a friend developed dementia when she was 52. It can happen at any age. Nobody knows the precise cause either. There are lots of theories but...
There are also many types of dementia. Alzheimer's is perhaps the best known form. And sometimes a brain scan can be inconclusive as it was with my mother in law and the precise nature of the dementia can not be pinpointed. Dementia is one of the major hidden problems in our aging population. Unfortunately it still retains a stigma and people can be reluctant to seek help or get involved.
Dementia is a terribly cruel condition and a bit like a wall being slowly built around a person as they lose the ability to effectively communicate. The person remains inside that wall and is underneath the same person. When the wall becomes too thick, the person does need specialist care but there are a load of things that can be done to slow the building of the wall and enable the person to live as independently as possible for as long as possible. However the person and their primary carer do have to take responsibility and seek out help. The primary carer needs as much support as the person suffering from dementia. And the people who work with dementia sufferers are not there to judge or point fingers but to help. It is all about dignity and allowing the sufferer to live as full a life as possible.
I truly wish my in laws had sought help and had not fallen through the cracks. I wish I had nagged more and had not accepted things at face value but I am the foreign daughter in law and was reluctant. Unfortunately you can not change the past, you can only go forward.
If just one person after reading this blog takes the time to get their affairs in order or urges someone else to, then this blog will have accomplished its purpose.
Michelle Styles writes warm, witty and intimate historical romances. You can read more about Michelle and her books on www.michellestyles.co.uk
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